Testing baby : the transformation of newborn screening, parenting, and policy making / Rachel Grob.
Search for related items by subject
|Subject:||Umschulungswerkstätten für Siedler und Auswanderer Bitterfeld
Newborn infants > Diseases > Diagnosis.
- ISBN: 9780813552026
- ISBN: 0813552028
- Physical Description: 1 online resource (xi, 272 pages).
- Publisher: New Brunswick, NJ : Rutgers University Press, ©2011.
|Bibliography, etc. Note:|| Includes bibliographical references and index.
|Formatted Contents Note:|| Saving babies, changing lives -- Diagnostic odysseys, old and new : how newborn screening transforms parents, encounters with disease -- Specters in the room : parenting in the shadow of cystic fibrosis -- Encounters with expertise : parents and health care professionals -- A house on fire : how private experiences ignite public voices -- Brave new worlds : can they be seen in a drop of blood?
|Summary:|| Testing Baby is the first book to draw on parents' experiences with newborn screening in order to examine its far-reaching sociological consequences. Newborn screening occurs almost always without parents' consent and often without their knowledge or understanding, yet it has the power to alter such things as family dynamics at the household level, the context of parenting, the way we manage disease identity, and how parents' interests are understood and solicited in policy debates. Rachel Grob's cautionary tale explores the powerful ways that parents' narratives.
|Reproduction Note:|| Electronic reproduction. [Place of publication not identified] : HathiTrust Digital Library, 2011.
|System Details Note:|| Master and use copy. Digital master created according to Benchmark for Faithful Digital Reproductions of Monographs and Serials, Version 1. Digital Library Federation, December 2002. http://purl.oclc.org/DLF/benchrepro0212
|Action Note:|| digitized 2011 HathiTrust Digital Library committed to preserve